- National Registry for Ichthyosis and Related Disorders - established to promote research into diagnosis and treatment, and to enroll affected individuals in the registry.
- Chorionic Villus Sampling Birth Defects Registry - to obtain information about CVS-exposed children with any type of birth defect or hemangioma.
- Gaucher Registry, The - longitudinal, observational program that tracks the health outcomes of routine clinical practice for patients with the disease.
- Perioperative Cardiac Arrest Registry -
- Prostate Worldwide Registry - interact with others prostate treatment.
- Chromosome 18 Registry & Research Society -
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