- Chorionic Villus Sampling Birth Defects Registry - to obtain information about CVS-exposed children with any type of birth defect or hemangioma.
- International Clearinghouse for Birth Defects Monitoring Systems - a non-governmental organization in official relations with the World Health Organization representing more than 30 malformation monitoring programs worldwide.
- Esophageal and Tracheoesophageal Fistula Repair - information for families of EA/TEF babies from the University of Minnesota Medical School.
- California Birth Defects Monitoring Program - public health program devoted to finding causes of birth defects, funded through the California Department of Health Services, and jointly operated with the March of Dimes.
- Dandy Walker Family Network - provides resources, characteristics, and treatment information. Includes Hayley Ann's story.
- KidsHealth for Parents: Birth Defects - information about common birth defects, causes, diagnosis, and prevention.
- Directory of Online Genetic Support Groups - listing of online genetic support groups. Includes sites pertaining to birth defects, genetics, and various syndromes and disorders.
- New Jersey Fetal Abnormalities Registry - collects information on pregnancies in which a physical problem with a baby's development is suspected before birth.
- ea/tef - provides information and support for persons born with the birth defect Esophageal Atresia and/or Tracheoesophagel Fistula.
- Oddities of the World - frank discussions and vivid images of human beings with birth defects, many of whom were at one time exhibited for profit.
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